Rare diseases

Tag: Rare diseases

Rare diseases

12.February 2026. Katarina Stevanović

Serious illness in Serbia: Angela exists, but the system does not see her

Angela is 15 years old, but she doesn't know it. He only knows his mother, who was left stranded and without alimony by the system

Health

09.May 2025. MS

Letter to the Prime Minister: 200.000 patients are waiting for innovative therapy

The Association of Patients of Serbia is requesting a meeting with the Minister of Finance, the Minister of Health and the director of the RFZO in order to find a solution for putting innovative medicines on the positive list. What are innovative medicines?

Social protection

14.February 2025. Marija L. Jankovic

Helping children suffering from rare diseases - rarely helps

Parents of children suffering from rare diseases were pleasantly surprised when the state announced a competition for help last year. And then there was the sobering up. Those affected told "Vreme" about the administrative hardships they were put in front of and the incomplete assistance that did not solve their problems.

Health

29.February 2024. SZ/RTS

International Day of Rare Diseases: Serbia still without a registry of patients

In Serbia, the International Day of Patients with Rare Diseases is celebrated under the slogan "I often think of you". There are no precise data, nor a registry of patients, but it is estimated that almost half a million of our citizens have a rare disease

Health care

18.February 2024. Z.S.

Payment of aid for patients with rare diseases has begun

Payments of financial support to patients with rare diseases and their families through three types of vouchers have begun

Health care

31.January 2024 MS

One-time assistance for patients with rare diseases up to 110.000 dinars

Stefan Živković from the National Organization for Rare Diseases of Serbia (NORBS) explains to Vreme how he can apply for assistance approved by the Government

Rare diseases

17.January 2024 Milica Srejić

The journey through time of the Ministry of Health: This year, the Program for 2023 is being worked on.

Despite the announcements, the Program for Rare Diseases was not adopted in 2023. In the answer to "Vreme", the Ministry of Health now states that the Program will be adopted this year, which would refer to the period 2023-2025. a year

Health care

12.January 2024 Milica Srejić

Rare diseases: No plan and program in 2023

Despite promises, the new Program for Rare Diseases for 2023 has not been implemented. The purpose of the Program is to enable timely diagnosis, effective treatment and improvement of the quality of life of those suffering from rare diseases. NORBS warns of the urgent need for the development and adoption of a new strategic document